Friday, January 30, 2009

Autism Walk.

I finally got a picture of the kids downloaded. GO COLTS!! We still love them even if they are not in the Superbowl.

This week has been a week of lots of snow. Will got to experience his first play in the snow earlier this week. He smiled a lot but was unable to move in all of his clothes. Faith wanted the "snowman" off of her boots. Funny girl.

Faith went to the neurologist last week and we got some good news for once. The doctor seemed to believe there was no reason that she will not be able to live a pretty normal adult life!!! That is music to my ears. They said that she does not appear to have any other syndrome but he agreed with the autism diagnosis. The doctor said her cognition skills were good. They do want a urine sample to check a couple things because her urine smells sweet. We were so proud of her because she actually let the doctor touch her without any tantrums.

Speaking of autism. I am on the Autism Walk community this year again. We have started this week planning everything. Please keep October 3rd open for the walk. We will soon be creating a team and asking everyone to help support Faith. Any tips with a team name would be very helpful. I am very passionate about Autism Speaks and what they do for families and the community. At work I am currently working on a grant that will provide equipment and training about autism. This grant is through Autism Speaks. They also lobby for insurance coverage for individuals with autism. You would be surprised what insurance will not cover is they find out your child has autism.

Will is doing good. He is saying so many things and really has great receptive language skills. He is learning what expressions are cute and will use them to his full advantage. He finally started to cut more teeth this week. He also has another double ear infection and bronchitis. Poor guy. We hope to hear soon from the doctors if is is cleared to have his tubes put in. I am kind of worried about surgery though since he still turns blue once and a while.

1 comment:

The Abraham Lamp Clan said...

Faith's Friends would be a good name...our team name for the March of Dimes March for Babies (formerly WalkAmerica) is Drew's Crew.