Tuesday, March 17, 2009

Will's ER trip and updates

Last night I spent a lovely six hours in the ER with Will. As most of us know he often is wheezy and has chronic ear infections. We have tried to get tubes put in but his breathing always gets in the way. Long story short is that late in the day he started to run a 103.8 temp. and breathing rate of 90 per/min. He was lethargic and not wanting to eat. For those of you who know Will, he never turns down food. After chest xrays, two urine caths (Yes I said 2) and blood work, the doctors determined he has a touch of pneumonia. Now he is on really strong steroids which in return has made him really mean. The fever has gone away but he still sounds like Darth Vader that swallow a squeaky toy. That is a quote from Mark who slept with him on his chest last night. This all comes in a week where I am in my busiest week of the year at work, doing 18 IEP conferences, Marks schedule at work changing and meetings for the Autism Walk. I think we have a minute or two this week if anyone needs help. Faith did enjoy the evening with Nana and Papa and got new shoes that she does not like to take off.

Faith has been in occupational therapy for about a month now at a new clinic and it is going great. This therapists is really able to get Faith to do things. This week we worked on getting dirty without having to wash our hands right away. She also got Faith to walk bare foot across the floor. This may sound silly but is it a big deal for Faith and those of us around her daily.

Mark is enjoying his job with the THPD. He is not home in the evenings but the kids do get to see him all morning. It works out because this gives me peace and quiet for a small sections of my day.

Things are going well me. I have successfully completed some of my first IEP conferences with no problems. Let's see how tomorrow goes. Work is going great minus some concerns for some of the quality of care for a few of my students. The evenings at home have been good when everyone is healthy. Faith is managing her tantrums much better in the evenings which is allowing us to get out and do more activities. Mom and Julie and Sam have been great this week and helping with the kids to allow me to get everything in this week since Mark's schedule got changed at the last minutes. Thanks.

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